Despite the significant number of people affected, there is a lack of accessible information about the quality of cancer care that could inform decisions about where to get that care.This report examines the development of a national quality reporting program for cancer care as part of a learning health care system. A workgroup of experts explore a first step in this direction: the leveraging of the well-established California Cancer Registry (CCR) to produce quality of care metrics for cancer care in California that are accessible to and meaningfully usable by patients, referring and specialist providers, payers, and policymakers. After thorough examination of the issue, the workgroup proposes a new quality of care reporting system for California, based on the CCR, that would include three elements:
- Expanded use of the registry's data to include quality measurement and public reporting, including provider identification
- Linkage of the registry to administrative claims and utilization data, in order to supply information not currently captured by the registry
- Linkage of the registry to systems of electronic health records (EHR), in order to further supplement registry data.