Services for people with life-limiting diseases, including COPD, dementia and heart failure are under-developed and fragmented in Ireland. There is no mention of the need for palliative care for people with life-limiting chronic diseases in the few disease-specific reports and documents available. The decision to select these three diseases for the purposes of the Extending Access Study was informed by the following: they are among the highest mortality rates in Ireland; research has indicated that people with these diseases have palliative care needs that are at least equal to those who have a cancer diagnosis and disease advisory and strategy groups in these areas established by the HSE Transformation Programme will be informed by the findings of this study.
- Services for people with life-limiting diseases, including COPD, dementia, and heart failure and under-developed and fragmented in Ireland. These three diseases were chosen for study because they are among the highest mortality rates in Ireland, research has indicated that people with these diseases have palliative care needs equal to those with cancer. People with a diagnosis of these diseases will typically have a range of other co-morbidities that need to be considered in their care pathways.
- 11% of Irish SPC services reported they restrict their services to people with cancer, MND, and HIV/AIDS, and 19% states they limit in some way the services they provide for people with conditions other than cancer.
- International palliative care service-model developments for people with COPD, dementia and heart failure have all focused on a collaborative approach between primary, secondary, and tertiary services.