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Aging and Disability Business Institute;
This toolkit offers guidance for aging and disability community-based organizations (CBOs), such as Area Agencies on Aging (AAAs) and Centers for Independent Living (CILs), that are in the early stages of seeking to contract with health care providers and payers to provide home and community-based services and supports. CBOs at various stages of contracting with health care entities can use this toolkit as a primer on how to conduct outreach and how to craft messages best suited to potential contracting targets.
Wilder Research Center;
Wilder Research worked with MNCDHH to create a data-informed strategic plan for better supporting DeafBlind children and youth in Minnesota. This report presents the results of discussions with an advisory group and in-depth interviews with DeafBlind young adults, parents of DeafBlind children, and professionals.
Center for American Progress;
In 2020, voters with disabilities turned out in force in one of the most consequential elections in U.S. history. According to data compiled by the U.S. Census Bureau, nearly 62 percent of disabled voters cast a ballot in the November 2020 election, compared with just about 56 percent of disabled voters who participated in the 2016 presidential election. 2020's high turnout is demonstrative of disabled voters' unwavering resolve to make their voices heard and to fully participate in American democracy. While all voters—regardless of disability status—experienced difficulties in registering to vote and casting ballots last year due to the coronavirus pandemic, disabled voters faced particularly significant challenges. This report examines the barriers disabled voters face when participating in elections and proposes solutions for improving the voting experience and encouraging voter participation.
California HealthCare Foundation;
Through CalAIM (California Advancing and Innovating Medi-Cal), a multiyear initiative to transform the Medi-Cal program, managed care plans now have the option to offer any of 14 Community Supports that provide person-centered services to address a variety of social drivers of health. Several of these Community Supports could help older adults and people with disabilities remain in their own homes, participate in their communities, and live independently in the setting of their choice.To support understanding and increased uptake of these services over time, this report provides an overview of and evidence summary for six Community Supports most relevant to supporting independent living for older adults and people with disabilities, including:Respite Services. Short-term services aimed at providing relief to caregivers of those who require occasional or temporary assistance or supervision.Nursing Facility Transition / Diversion to Assisted Living Facilities. Services that help people remain in the community by facilitating transitions from a nursing facility back into a home-like, community setting or prevent nursing facility admissions for those with imminent need.Community Transition Services / Nursing Facility Transition to a Home. Nonrecurring support, including setup expenses, to avoid further institutionalization and help people remain in the community as they return home from a licensed nursing facility.Personal Care and Homemaker Services. Supports for people needing assistance with daily activities, such as bathing, dressing, cooking, eating, and personal hygiene.Environmental Accessibility Adaptations (Home Modifications). Physical adaptations to a home when necessary to ensure health, welfare, and safety, or promote greater independence at home through improved functionality and mobility.Medically Supportive Food / Meals / Medically Tailored Meals. Meal services to help people achieve their nutritional goals at critical times (such as after a hospital or nursing facility stay) to regain and maintain their health.
Immigrants with disabilities face multiple structural challenges, including discrimination, socioeconomic disadvantage, and barriers to safety net access. However, limited research discusses the prevalence of disability among nonelderly adult immigrants and the characteristics of this population. Drawing on five-year estimates from the 2015 to 2019 American Community Survey, this brief provides a snapshot of select characteristics of nonelderly immigrants with disabilities ages 18 to 64. Overall, 5.6 percent of nonelderly immigrants have a disability. Disaggregation by race and ethnicity shows us that this prevalence is highest among nonelderly Black Latinx immigrants at 10.2 percent and lowest for non-Latinx Asian immigrants at 4.2 percent. Other key findings are as follows:Roughly 1 in 3 (35.3 percent) immigrants with disabilities has limited English proficiency.About 3 in 10 (30.7 percent) immigrants with disabilities are from Mexico.Nearly half (49.3 percent) of nonelderly immigrants with disabilities report having low family incomes (under 200 percent of the family federal poverty level).About four in 10 (41.4 percent) immigrants with disabilities are employed. Three in 10 (30.0 percent) immigrants with disabilities are working in service occupations, such as janitors and building cleaners, housekeeping cleaners, and personal care aides.One in 8 (12.7 percent) immigrants with disabilities reported receiving Supplemental Security Income in the 12 months before the survey.Three in 10 (30.3 percent) noncitizens report being uninsured at the time of the survey, while 1 in 10 (9.5 percent) naturalized citizens report being uninsured.The results presented in this brief can inform efforts to improve the well-being of immigrants with disabilities through strategies such as increased access to government public services, improvements in job access and quality, and development of community models to promote disability inclusion.
Disability & Philanthropy Forum;
The Disability & Philanthropy Forum is an emerging philanthropy-serving organization created by the Presidents' Council on Disability Inclusion in Philanthropy. Central to the Forum's mission is expanding philanthropic commitment to disability rights and justice by centering the leadership of the disability community.To help funders and philanthropy-serving organizations as they engage in their disability inclusion journeys, the Forum created the Disability Inclusion Pledge. The Pledge identifies concrete ways for funders and others in the sector to actively shift away from policies and practices that perpetuate ableism — the systemic stigmatization of and discrimination against people with disabilities — and uplift disability as an essential component of advancing equity.Beginning the Journey: Disability Inclusion Pledge Survey Findings and Recommendations provides a baseline measurement of how current practices and plans of responding Pledge signatories align with each of the eight action agendas included in the Pledge.
Christopher & Dana Reeve Foundation;
El Centro Nacional de Recursos para la Parálisis (NPRC) de la Fundación Reeve se complace en lanzar su quinta edición de la Guía de recursos sobre la parálisis en español.Para el mes de concientización sobre las lesiones de la médula espinal, se ha lanzado a la comunidad la nueva edición actualizada de la Guía de recursos sobre la parálisis en español con una nueva sección que destaca la parálisis dentro de la comunidad latina. La sección incluye entrevistas con latinos que viven con parálisis, cuidadores y profesionales como fisiatras y abogados de inmigración.La quinta edición incluye información actualizada sobre todos los temas relacionados con la parálisis, incluidas las causas de la parálisis, las condiciones secundarias, la investigación, la tecnología y más. Además, un capítulo renovado sobre militares y veteranos brinda información actualizada sobre la elegibilidad, el proceso de solicitud, los beneficios y más. El PRG en español incluye enlaces externos a contenido confiable en español e imágenes, fotos y gráficos traducidos culturalmente sensibles.--The Reeve Foundation's National Paralysis Resource Center (NPRC) is pleased to release its 5th edition of the Spanish Paralysis Resource Guide (Guía de recursos sobre la parálisis).For Spinal Cord Injury Awareness month, the newly updated edition of the Spanish Paralysis Resource Guide (Guía de recursos sobre la parálisis) has been released to the community with a new section highlighting paralysis within the Latino community. The section includes interviews with Latinos living with paralysis, caregivers, and professionals such as physiatrists and immigration lawyers.The 5th edition includes updated information about all paralysis-related topics, including causes of paralysis, secondary conditions, research, technology, and more. In addition, a revamped Military and Veterans chapter provides updated information on eligibility, the application process, benefits, and more. The Spanish PRG includes external links to the trust-worth Spanish content and culturally sensitive images, photos, and translated graphics
Center for American Progress;
Access to reproductive health care continues to be eroded in the United States. In 2022 alone, 41 states have introduced more than 500 abortion restrictions, and the U.S. Supreme Court is slated to decide a case that will determine the fate of Roe v. Wade. Attacks on reproductive health care have a disproportionate impact on certain individuals and communities—particularly the disability community.Reproductive and disability justice are both human rights-based frameworks that, at their core, share fundamental similarities: They both prioritize the right to bodily autonomy and self-determination; the right to raise children—if one chooses to have them—with dignity and in a safe environment; the right to access the health care one needs, free from political interference or stigmatization; and the right to community care. Yet even with such overlaps, the reproductive justice and disability justice movements have rarely interacted due to misunderstanding and miscommunication, particularly around abortion.This report reviews the historical context of the disability and reproductive justice movements, discussing how racism, sexism, and ableism have built discriminatory structures—from barriers to accessing reproductive health services to issues around forced sterilization, sex education, guardianship, parenthood, and sexual violence—that have kept disabled people, particularly disabled people of color, from achieving reproductive equity and justice. It then discusses the work done by the Disability Justice Initiative at the Center for American Progress, which is an interdisciplinary team that utilizes a disability justice framework to study structural discrimination and its impacts on policy. Lastly, this report outlines future plans, emphasizing the importance of collaboration between the two movements.
Autistic Women & Nonbinary Network (AWN);
Disabled people have fought to make their own decisions about their bodies. But many laws still take that decision away. These include laws about sterilization. Sterilization is an operation that stops someone from ever having babies. In many states, laws say that doctors can sterilize disabled people against their will. This is called forced sterilization. Most states allow forced sterilization today. Laws allowing forced sterilization exist in 31 states plus Washington, D.C. We wrote this report in Plain Language. Plain Language is a style that is more accessible to many people.
Center for American Progress;
This report provides an overview of the impacts of the U.S. asylum system on disabled children and adults; explores legal issues at the intersection of immigration and disability; and offers recommendations for applying existing disability civil rights protections, such as the ADA, to assist disabled asylum-seekers through the process of gaining permanent legal status.
SIECUS: Sex Ed for Social Change;
The United Nations Convention on the Rights of Persons with Disabilities, an international human rights treaty of the United Nations, states that Youth with Disabilities (YWD) should be afforded the same range and quality of sexual and reproductive health services—including sex education—enjoyed by youth without disabilities. To date, school-based efforts toward inclusion and integration of YWD in classrooms and social activities has not extended to sex education. Further federal and state regulations are needed to ensure that YWD have access to free and appropriate public education on sexual health and can achieve health equity with their peers
United for ALICE;
Longstanding discriminatory policies and practices that impact access to education, employment, health care, housing and other resources create barriers to financial stability for people with disabilities. This fact hits home for the more than 40 million people in the U.S. who have a cognitive, hearing, vision, or ambulatory disability, or one that makes self-care or independent living difficult.According to the outdated Federal Poverty Level, 18% of people with disabilities in the U.S. lived in poverty in 2019. Yet United For ALICE data shows that another 34% were also struggling, in households that earned above the FPL but less than what it costs to afford the basics. These households are ALICE: Asset Limited, Income Constrained, Employed.Between families in poverty and those who are ALICE, more than half of all people with disabilities in the U.S. lived in a household with income below the ALICE Threshold, struggling to afford essentials in the communities where they lived.